World TAPS Day is December 8th, 2021

World twin anemia polycythemia awareness day is December 8

World TAPS DAY is December 8

WHAT IS TAPS?

What is TAPS? - What is twin anemia polycythemia sequence?

What is TAPS?

“What is TAPS?” This is a very critical question asked by parents around the world.  They are pregnant with twins, triplets, or higher order multiples and have either just been diagnosed by their doctor during their pregnancy or their babies have been diagnosed at birth.  If they are in the care of an educated high risk doctor (Maternal-Fetal Medicine Specialist) they may have just been told their babies are at risk, which is exactly what we are fighting for doctors to do.  Twin anemia polycythemia sequence is a rare, chronic form of twin to twin transfusion syndrome (TTTS) where the babies are sharing blood vessels in their single monochorionic placenta.  However, unlike classic TTTS, babies with TAPS are disproportionately sharing red blood cells only, not the volume of blood that causes amniotic fluid problems clearly seen in TTTS.  The best way to diagnose or rule out TAPS during pregnancy is with the use of MCA Dopplers (middle cerebral artery) in the brains of the babies to measure the speed of blood and reticulocyte levels at delivery.  

World TAPS DAY is December 8 – #TAPSisSilent

World TAPS Awareness Day will help to educate parents and doctors on the life-saving measures of the MCA Doppler and provide standard of care guidelines, research protocols to stage and treat TAPS as well as document pregnancies to help further research.  Families will be sharing their stories and encouraged to help increase awareness with #TAPSisSilent.  There are no physical signs in the mother with TAPS and she could be told her pregnancy is progressing perfectly when her babies could be severely affected.

We are fighting for families to know the questions to ask, the tests to demand and treatments their babies might need so they don’t lose their babies before they have had a chance to save them.

Landmarks will also be lighting up light blue, the official color of the fight against TAPS.  We are fighting for the day after the storm, when the skies turn blue and all babies will live and be healthy, and thrive like daisies flourishing in a field

World TAPS Awareness Day

Join us to Increase Awareness

Join us to increase awareness

Social Media Banner

Please feel free to use this banner on your personal or organizational pages on Facebook and Twitter.

Join us to increase awareness

Social Media Banner

Please feel free to use this banner on your personal or organizational pages on Facebook and Twitter.

Join us to increase awareness

Social Media Banner

Please feel free to use this banner on your personal or organizational pages on Facebook and Twitter.

Join us to increase awareness

Social Media Graphic

Please post this graphic on your personal or organizational social media pages.

2021_ttts_awareness-month_website-downloadables_TAPS is SILENT Graphic Post
2021_ttts_awareness-month_website-downloadables_Awareness Month Announcement - Instagram Post

Join us to increase awareness

Awareness Days Graphic

Please post this graphic on your personal or organizational social media pages.

Join us to increase awareness

Social Media Graphic

Please post this graphic on your personal or organizational social media pages.

2021_ttts_awareness-month_website-downloadables_TAPS Awareness Day Graphic