World TAPS Day is December 8th, 2023

World twin anemia polycythemia awareness day is December 8

World TAPS DAY is December 8

WHAT IS TAPS?

What is TAPS? - What is twin anemia polycythemia sequence?

What is TAPS?

“What is TAPS?” This is a very critical question asked by parents around the world.  They are pregnant with twins, triplets, or higher order multiples and have either just been diagnosed by their doctor during their pregnancy or their babies have been diagnosed at birth.  If they are in the care of an educated high risk doctor (Maternal-Fetal Medicine Specialist) they may have just been told their babies are at risk, which is exactly what we are fighting for doctors to do.  Twin anemia polycythemia sequence is a rare, chronic form of twin to twin transfusion syndrome (TTTS) where the babies are sharing blood vessels in their single monochorionic placenta.  However, unlike classic TTTS, babies with TAPS are disproportionately sharing red blood cells only, not the volume of blood that causes amniotic fluid problems clearly seen in TTTS.  The best way to diagnose or rule out TAPS during pregnancy is with the use of MCA Dopplers (middle cerebral artery) in the brains of the babies to measure the speed of blood and reticulocyte levels at delivery.  

 

TAPS is a Form of TTTS

The TTTS Foundation has helped numerous families showing signs of TAPS, twin anemia polycythemia sequence, after laser surgery especially.   We are devoted to representing these families not only on December 7th World TTTS Awareness Day, but on December 8th World TAPS Day where we can dive in a bit deeper in the education of this condition.  There is an urgent need to increase awareness of the use of the MCA (middle cerebral artery) doppler during routine ultrasounds to diagnose or rule out TAPS.  The TTTS Foundation, therefor, also has created this day to be MCA Doppler Day.

Facebook Frames -TAPS Day December 8th

We have Facebook Frames also for World TAPS Awareness Day which are updated for 2024.  Make a difference on December 8th and change your frame and tell your babies’ story.  Click here to make this frame…

Awareness Video Campaign

We will be continuing to post videos of families and doctors talking about TAPS and ask that you help share these videos to your personal pages to increase awareness.  Go to facebook.com/tttsfoundation

World TAPS Awareness Day

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