Support Groups

THE TWIN TO TWIN TRANSFUSION SYNDROME FOUNDATIOIN

Facebook Support Groups

facebook page

The Twin to Twin Transfusion Syndrome Foundation TTTS, TAPS, SIUGR and TRAP

https://www.facebook.com/tttsfoundation/ Please like and share our page.  Here we run our awareness month video campaign and major announcements.  

MAIN GROUP

The Twin to Twin Transfusion Syndrome Foundation TTTS, TAPS, SIUGR and TRAP

A private group for all families with all outcomes to support and uplift one another before, during and after pregnancies with TTTS, including TAPS, SIUGR and TRAP https://www.facebook.com/groups/tttsfoundation

AT RISK AND DIAGNOSED

The TTTS Foundation Diagnosed and During Pregnancy

A closed private group for TTTS, including TAPS, SIUGR and TRAP.  Please contact us to be added to the group.  Parents are currently pregnant and in the midst of treatment or at risk pregnancies.  This group is not searchable for the families’ privacy.

FIGHT TAPS

TAPS -Twin Anemia Polycythemia The TTTS Foundation

A closed private group providing support specifically for families at-risk or diagnosed with TAPS.

FIGHT SIUGR

SIUGR-Selective Intrauterine Growth Restriction The TTTS Foundation

A closed, private group proving specific support for SIUGR 

fight trap

TRAP -twin reversed arterial perfusion The TTTS Foundation

A private support group for families diagnosed with TRAP.  Compassionate and loving support is shared for all.

SURVIVORS

The TTTS Foundation Survivors Support Group

Families gather to share milestones with their children and questions about TTTS.  

DAISY BABIES NICU

The TTTS Foundation NICU Daisy Babies

For the critical time families spent in the neonatal intensive care unit.  Familes with all outcomes.  Moderated with the help of Jade, our NICU Coordinator after the births of her daughters at 22 weeks.  

SPECIAL NEEDS

The TTTS Foundation Special Needs Support Group

A closed and private group for families in need of support with the special needs of their children.

Twin to Twin Transfusion Syndrome is a powerful disease, but it's not stronger than a mother's love.