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When you learn you are pregnant with twins, it is such a blessed moment in your life. You feel so fortunate and chosen by God to have such a special gift. You dream of holding two babies, dressing them the same and watching them grow up together. This is what God intended. God did not make a perfect world though. There is evil in this world and one form of it is a disease called twin to twin transfusion syndrome. It does not care who it hurts, and it always happens to the parents who want and love their babies so very much.

When parents learn that one of their babies has passed away, life will never be the same again. There is deep sorrow and shock. There is confusion about whether or not to deliver the babies. There is no reason to deliver the babies, unless the surviving baby is in major distress. There is a risk that the living baby may bleed blood to his or her twin, through the connecting blood vessels in their shared placenta that caused the twin to twin transfusion syndrome in the first place. If this happened, it was instantaneous at the time of the loss and already happened by the time you determined the loss. Delivering the babies, as many doctors think should happen, will not prevent it. It is better to stay pregnant and get to a gestational age to best help your surviving baby.

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What to look for

There is a period of about 2 weeks where if there are no signs of distress with the surviving baby then this “bleeding” in laymen’s terms, most likely did not happen. You should feel confident that your baby should be OK. Nothing will take away your fears completely until you deliver and the pregnancy is finally over and you hear your baby crying. 

But, let this give you a true understanding of hope that he or she will be just fine. You should also be getting blood work done to make sure your blood clotting mechanisms are working correctly within your own blood supply. This is a small risk, but one that should not be ignored.

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Twin to Twin Transfusion Syndrome is a powerful disease, but it's not stronger than a mother's love.