Coordinators

Coordinator

Meet Our Coordinators

PRAYER COORDINATOR

Terri Ann

“For the last 18 years, I have dedicated my life to supporting Mary and The TTTS Foundation and to pray and support other moms diagnosed with TTTS. Our twin daughters survived TTTS, born at 28 weeks”

SIUGR COORDINATOR

Carolyn

“It is my mission to spread awareness of TTTS and SIUGR to provide families with the educational tools they need to empower themselves as they speak with their own doctors. I want nothing more than for every family to have the positive outcome that we did.”

NICU COORDINATOR

Jade

“The TTTS Foundation gave me peace of mind to just be a mother without fear for financially providing for my family. Giving my time as a NICU coordinator means I can return the favor, but also just be there to support other families who really need a listening ear. I look forward to continue raising awareness and advocate not only for 22 weekers, but for babies and mothers everywhere.”

SPECIAL NEEDS COORDINATOR

Cindy

“I have been the Special Needs Coordinator for the last 25 years and am inspired to be a voice and make a difference.”

TRAP COORDINATOR

Kristin

“It is such a valuable thing to be able to talk with someone who has been through the same pregnancy as you have, especially when it is a pregnancy like TRAP. I am glad to be The TTTS Foundation’s TRAP Coordinator”

bereavement COORDINATOR

Dillon

“I have witnessed my whole life the depth of sorrow that comes from the loss of a child. Every bereavement care package I send out for The TTTS Foundation, I talk to the Matthew and Steven Bears and tell them they have a big job ahead of them. I bless the bears and pray for each baby by name and send them to their families. They bring such comfort. It is my honor to support you.

"I felt so supported and cared for throughout my entire pregnancy. Mary would often message me to check up and see how things were going. Without her support and guidance, I doubt the outcome would have been as successful as it was. The TTTS Foundation is an invaluable nonprofit that provides resources and support for those struggling to fight TTTS. I'm so grateful that she founded this wonderful organization!"

The Twin to Twin Transfusion Syndrome Foundation was such an encouragement to us during our TTTS Journey. Our twins were diagnosed with Stage 3 TTTS at 15 1/2 weeks gestation. We had a laser surgery at 17 weeks. The TTTS Foundation helped alleviate some of our financial burden during our 19 day stay away from home. "Since our delivery, Mary has continued to offer support and encouragement to my family and many others. We are truly thankful for all that the Foundation does to support families going through this terrible disease."

"Through this foundation, my sister had incredible resources and amazing people to support her, console her, and guide her through her pregnancy and surgery and up until today. It has been over 2 years since my niece was born and my sister still keeps in touch and has made lifelong friends. Thank you for being there for my sister, brother in law and niece when they needed you the most."