Board of Directors

Board of directors

Meet Our Board


PRESIDENT AND TREASURER

Mary

“On December 7, 1989 I made a promise to my twins sons, Matthew and Steven, that they would be known and remembered and that I would find the answers.  TTTS robbed me of my son Steven and all his generations to come.  My promise kept is my life’s conviction.”  

SECRETARY

Alice

“I have been brought to tears witnessing Mary help families in deep distress over the phone completely become uplifted and empowered.  Being on the Board of Directors and helping families across the world is an honor.”

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CREATIVE DIRECTOR

Matthew Steven

“I have helped the Foundation my whole life out of love for my twin Steven. I have officially been on the board for several years and I am devoted to helping to increase awareness of the organization and our mission to reach more families in need. I dedicate my work to my brother.”

Dr. De Lia Conferernce

BOARD MEMBER

Julian E. De Lia, MD

“In 1988, I pioneered and performed the first intrauterine placental laser surgery for TTTS in the world.  Mary and The TTTS Foundation were the other half I needed to reach the parents desperate for help.  Here we are 30 years later with a forever bond to end this disease and a promise kept from her to her sons.”

BEREAVEMENT COORDINATOR

Dillon

“The board works tirelessly throughout every year to bring families together all around the world to partner with us to be able to help the next family in crisis.”

BOARD MEMBER

Logan

“It makes me sad to know this disease is in the world.  It makes me feel better to be involved and take action to fight it.  I love sharing my ideas and use my computer skills to help give direction to the organization.”