About the Foundation

about the foundation

Where We've Been and Where We're Going

Welcome to the About the Foundation section of The Twin to Twin Transfusion Syndrome Foundation’s Official website.  To help you find the information and support you need quickly, we have included a summary of each section for you below. From a promise made to Matthew and Steven, the two little boys that started the fight against TTTS, including TAPS, SIUGR and TRAP, to the meaning behind the daisies, the history of TTTS and The TTTS Foundation and the collaborative dedication of our Board of Directors, Medical Advisory Board, Coordinators and volunteers committed to the mission, philosophy and dreams of the organization.

For Steven, twin to Matthew

About the Foundation

For Matthew and Steven: a promise kept

On a snowy night December 7, 1989 a promise was made.

About the Foundation

Daisy Babies

Fighting for the day after the storm when the sky turns blue and all the babies will survive and be healthy and flourish like daisies in a field.  Daisy Babies are babies that have gone through TTTS, including TAPS, SIUGR and TRAP.

About the Foundation

Mission, Philosophy and Organization History

Connecting the world to Fight TTTS, including TAPS, SIUGR and TRAP for over 30 years. Dedicated to compassionately and empathetically providing immediate and lifesaving educational, emotional and financial support to families, medical professional and other caregivers before, during and after a diagnosis of twin to twin transfusion syndrome with integrity, honesty, professionalism.

About the Foundation

Programs

Helping families worldwide from pregnancy through diagnosis, NICU, special needs and the loss of one or all of their precious babies.  

About the Foundation

History of TTTS

TTTS can be traced back to the Bible,  With dedicated pathologists and the pioneering work of Dr. Julian De Lia, the lives of babies began to be saved all over the world.

About the Foundation

Board of Directors

The heart and soul of the organization.

About the Foundation

Medical Advisory Board

Our dedicated medical partners and friends,

About the Foundation

Coordinators

Loving, dedicated moms committed to improving the lives of the babies and families they support.

About the Foundation

Contact Us

How to reach us.