We are so devastated and sad to share with you that our mentor, board member, hero and best friend Dr. Julian E. De Lia has passed away on November 28, 2022. He is forever loved and cherished by thousands of families all over the world. We are going to miss him endlessly and will carry on his legacy to end the suffering from TTTS.
A celebration of life service is to be held in New Jersey in the Spring and all families are welcome and encouraged to attend. Memorial gifts are appreciated by his wife Ellie and son Joe.
Congratulation on being pregnant! With multiples, it is crucial to ask, “Is it one placenta or two?” Knowledge is power. We will prepare you for your special pregnancy!
Contact us to join our private pregnancy group.
TAPS is a form of TTTS. Where TTTS involves a difference in volume of blood creating amniotic fluid problems, TAPS does not as it involves a difference in the red blood cells only. MCA dopplers during ultrasounds must be done to diagnose TAPS.
Join our support group today at: facebook.com/groups/fighttaps.
SIUGR is a form of TTTS. Typically, there is one placenta to one baby, but sometimes when the miracle of embryo splitting occurs, the identical babies end up sharing a placenta with an unequal shares. We are all here to help you today.
Join our support group today at: facebook.com/groups/fightsiugr.
TRAP is a form of TTTS. All babies are meant to be or you would not be pregnant with them. Sometimes, during the embryo splitting, one baby does not fully develop. You are not alone.
We have loving, compassionate families to support you at facebook.com/groups/fighttrap.
The Twin to Twin Transfusion Syndrome helps families 24 hours a day, 7 days a week in all time zones. You can email or message us on social media, but if it is urgent, please call. We want to help you immediately. Please see links below for critical steps to take when you find out you are pregnant with multiples and diagnosed.
If you are pregnant with monochorionic “at risk” twins or diagnosed with TTTS, including TAPS, SIUGR and TAPS – this action plan can help calm you and empower you to get the best care for your babies.
Years of experience has led to The TTTS Foundation’s official list of must ask questions to help gather the measurements and information to determine a diagnosis of TTTS, including TAPS, SIUGR and TRAP
In an age of social media, it is more uncommon now than ever to talk on the phone, but we can help you best this way. Leave a message if we are on a call with another family, but call. We will help you!