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Honoring the incredible life and pioneering fetoscopic laser surgery of Dr. Julian E. De Lia

Honoring the incredible life and pioneering fetoscopic laser surgery of Dr. Julian E. De Lia

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We are so devastated and sad to share that our mentor, board member, hero and best friend Dr. Julian E. De Lia has passed away on November 28, 2022.

He is forever loved and cherished by thousands of families all over the world. We are going to miss him endlessly and will carry on his legacy to end the suffering from TTTS.

A public service and gathering is being planned for August 4 during The Twins Days Festival in Twinsburg, Ohio where Dr. De Lia came with us for over 30 years, surrounded by babies and children he saved. Please join us to honor him. Memorial gifts are appreciated by his wife Ellie and son Joe.

Donate in honor of Dr. De Lia to Continue his lifesaving work

33 Years of Connecting the World to Fight Twin to Twin Transfusion Syndrome, TAPS, SIUGR and TRAP

Mission Statement

Solely dedicated to providing immediate and lifesaving educational, emotional and financial support to families, medical professionals and other caregivers before, during and after a diagnosis of Twin to Twin Transfusion Syndrome including forms of TTTS called TAPS, SIUGR and TRAP. We are dedicated to saving the babies and providing NICU, special needs and bereavement support to families suffering from immense loss as well as furthering research into monochorionic placentas so all babies can come home with their families and be together the way twins, triplets and more are meant to be.

Here to Help

From Pregnancy Through Diagnosis and Treatment

I Am

Pregnant.

Congratulation on being pregnant!  With multiples, it is crucial to ask, “Is it one placenta or two?”  Knowledge is power.  We will prepare you for your special pregnancy!

Contact us to join our private pregnancy group.

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I Am

Diagnosed with TTTS.

You are scared and devastated, but soon you will be empowered with a plan.  With 32 years fighting TTTS with our medical board, we are dedicated to helping you.

Join our incredible support group today at: facebook.com/groups/tttsfoundation and contact us to join our private pregnancy group. 

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I Am

Diagnosed with TAPS.

TAPS is a form of TTTS. Where TTTS involves a difference in volume of blood creating amniotic fluid problems, TAPS does not as it involves a difference in the red blood cells only. MCA dopplers during ultrasounds must be done to diagnose TAPS.

Join our support group today at: facebook.com/groups/fighttaps.

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I Am

Diagnosed with SIUGR.

SIUGR is a form of TTTS.  Typically, there is one placenta to one baby, but sometimes when the miracle of embryo splitting occurs, the identical babies end up sharing a placenta with an unequal shares.  We are all here to help you today.

Join our support group today at:   facebook.com/groups/fightsiugr.

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I Am

Diagnosed with TRAP.

TRAP is a form of TTTS.  All babies are meant to be or you would not be pregnant with them.  Sometimes, during the  embryo splitting, one baby does not fully develop.  You are not alone.

We have loving, compassionate families to support you at facebook.com/groups/fighttrap.

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I completely recommend The TTTS Foundation organization, from the bottom of my heart. In this day and age is hard to find good, loving people. Sometimes its is amazing to come across someone that can be like family to a complete stranger.
Sonia
SoniaCEO
This is an organization whose mission was born from the heart, that operates out of passion, and lives to serve. Through its tireless work, the TTTS Foundation hopes to stop TTTS and I will always support that.
RSalberg
RSalbergCEO
This is a truly superlative non-profit that combines loving compassion with a host of useful knowledge and resources to assist parents during one of the most trying, overwhelming and traumatic moments in life. I don't know how we could have gotten through it without them.
Sandy
SandyCEO
The Twin to Twin Transfusion Syndrome Foundation is far more than a Foundation. The TTTS Foundation is literally HOPE, LIFE, COMFORT, EDUCATION, FAITH, WRAPPED IN EMPOWERING MOTHERS WITH LIFE SAVING INFORMATION AND SUPPORT, IN THE MIDST OF A HOPELESS DIAGNOSIS
Terri90CEO
The TTTS Foundation did more than I could have ever imagined to help my daughter and her husband get through two of the most difficult pregnancies of their lives! TTTS is a FABULOUS organization that truly helps parents in such difficult times.
MikkiCEO
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Important Ways to Get Started Today

The Twin to Twin Transfusion Syndrome helps families 24 hours a day, 7 days a week in all time zones.  You can email or message us on social media, but if it is urgent, please call.  We want to help you immediately.  Please see links below for critical steps to take when you find out you are pregnant with multiples and diagnosed.

Start your MEDICAL PLAN OF ACTION

If you are pregnant with monochorionic “at risk” twins or diagnosed with TTTS, including TAPS, SIUGR and TAPS – this action plan can help calm you and empower you to get the best care for your babies.

Get Started

read the 15 MOST IMPORTANT QUESTIONS TO ASK YOUR DOCTOR

Years of experience has led to The TTTS Foundation’s official list of must ask questions to help gather the measurements and information to determine a diagnosis of TTTS, including TAPS, SIUGR and TRAP

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Join a Support Group

In an age of social media, it is more uncommon now than ever to talk on the phone, but we can help you best this way.  Leave a message if we are on a call with another family, but call.  We will help you!

Find Support

Twin to Twin Transfusion Syndrome is a powerful disease, but it's not stronger than a mother's love.

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