December 7, 2020 World TTTS Awareness Day

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30 Years of Connecting the World to Fight Twin to Twin Transfusion Syndrome, TAPS, SIUGR and TRAP

Mission Statement

Dedicated to providing immediate and lifesaving educational, emotional and financial support to families, medical professionals and other caregivers before, during and after a diagnosis of Twin to Twin Transfusion Syndrome including TAPS, SIUGR and TRAP.

Here to Help

From Pregnancy Through Diagnosis and Treatment

I Am

Pregnant.

Congratulation on being pregnant!  With multiples, it is crucial to ask, “Is it one placenta or two?”  Knowledge is power.  We will prepare you for your special pregnancy!

I Am

Diagnosed with TTTS.

You are scared and devastated, but soon you will be empowered with a plan.  With 30 years fighting TTTS with our medical board, we are dedicated to helping you.

I Am

Diagnosed with TAPS.

TAPS is a form of TTTS. Where TTTS involves a difference in volume of blood, TAPS involved a difference in the red blood cells only.  MCA dopplers are the words to learn.

I Am

Diagnosed with SIUGR.

SIUGR is a form of TTTS.  Typically, one placenta to one baby, but sometimes when the miracle of embryo splitting occurs, the identical babies end up with an unequal share.

I Am

Diagnosed with TRAP.

TRAP is a form of TTTS.  All babies are meant to be or you would not be pregnant with them.  Sometimes, during the  embryo splitting, one baby does not fully develop.

Important Ways to Get Started Today

The Twin to Twin Transfusion Syndrome helps families 24 hours a day, 7 days a week in all time zones.  You can email or message us on social media, but if it is urgent, please call.  We want to help you immediately.  Please see links below for critical steps to take when you find out you are pregnant with multiples and diagnosed.

Start your MEDICAL PLAN OF ACTION

If you are pregnant with monochorionic “at risk” twins or diagnosed with TTTS, including TAPS, SIUGR and TAPS – this action plan can help calm you and empower you to get the best care for your babies.

read the 15 MOST IMPORTANT QUESTIONS TO ASK YOUR DOCTOR

Years of experience has led to The TTTS Foundation’s official list of must ask questions to help gather the measurements and information to determine a diagnosis of TTTS, including TAPS, SIUGR and TRAP

Join a Support Group

In an age of social media, it is more uncommon now than ever to talk on the phone, but we can help you best this way.  Leave a message if we are on a call with another family, but call.  We will help you!

Twin to Twin Transfusion Syndrome is a powerful disease, but it's not stronger than a mother's love.