Twin to Twin Transfusion Syndrome Foundation Banner
International Office
411 Longbeach Parkway
Bay Village, Ohio 44140 USA
Help For Loss Photo

Loss of One Loss of All Compassionate Deliveries

How Am I Going To Do This?
…God Will Carry You

The Lord will never leave us
nor forsake us,
He promised He’d be with us through it all.
It often seems He’s walking right beside us
As he guides us through our problems
large and small.
But there are times we just can’t feel His presence,
When the road’s so rough,
we need Him all the more.

We wonder why we’re so alone and helpless,
Why His hand’s not there to lead us as before…
But if we listen quietly, He’ll tell us,

“Take a moment and remember what I said:
If you fail to see me walking right beside you,
It’s because I have you in my arms instead,
For together, we will cross the highest mountain,
Together we will face the stormy sea,
You never are alone, you’re never helpless!
I’ll carry you,
let go and lean on me.”

He is with you…even in this time of sorrow
too deep for words.

A Mother’s Love

I didn’t have to look into your eyes
to fall in love with you.
I didn’t need to hear you cry
to know you loved me too.
I didn’t need to hold your hand
to cherish you for always.
Within my womb, we shared our hearts.
You touched my soul.
You sweetened my spirit.
You gave me memories I’ll always hold dear.
Yes. My heart aches since you departed too soon.
But a mother’s love does not end with death.
For you are my child.
Forever my love is yours.


Help From Those Who Have ‘Been There’

Both of your twins were meant to be or you would
never have become pregnant with them.

It is very important to tell others to acknowledge them both. Once a mother of twins, always a mother of twins. Nothing could, did, or will ever change the bond between a mommy and her babies. You will always be as one. And, your babies will always be twins.

Let others know that they can never fully understand
the depth of your sorrow.

Say to them:
“If you love me, then trust me… that this is what I need from you.
It is not about what others think is best for me.”

Ask them to listen.

It is a matter of trust.

It Is About How You Walk Away, Not The Other Person

We have all been there when you gather all the strength you have to go outside only to have someone approach you and ask you, “How old is your baby?’ This is the most painful question because it should be “How old are your babies?” Sometimes the scenario is slightly different but it always comes on quickly and out of the blue. The best answer is, “My twins were born 4 months ago”, or however the time. Bringing up both of your babies does set you up to most likely hear the “At least you have one” statement, but you need to care more about how you walk away from this situation then the other person. If you answer the way we suggest, you will be proud of yourself that you stood up for your baby that passed away. If you don’t, you will most likely hate yourself and take 3 days to work through it. Why live for strangers, or even for our closest family and friends. They have not been through this. If they say, “At least you have one” say that is hurtful. Of course I am grateful for my baby, but he lost his brother or she lost her sister and they are important too. Tell them, just to say they are sorry. Unfortunately, we have to teach others how to help us. Remember, stand up for yourself and your babies. Keep their twinship because that is the reality.

The TTTS Foundation In The News


>

Learn about TAPS- MUST do MCA dopplers on all pregnancies

A form of TTTS, TAPS can occur after laser surgery or during a monochorionic pregnancy with no signs of TTTS or problems.
>

Updated List of Questions

Questions to Ask at Every Ultrasound. Ultrasounds Must Be Weekly Starting at 16 Weeks.
>

Raise Donations on Facebook

This is a fantastic and easy way to support the fight against TTTS and bring help and hope to families
>
World Awareness Day - Dec. 7 2010

TTTS Walk for the babies

Official TTTS Foundation Events
Copyright © 1997-2018 The Twin To Twin Transfusion Syndrome Foundation. All Rights Reserved
411 Longbeach Parkway, Bay Village, Ohio 44140 USA | 800-815-9211 |