Twin to Twin Transfusion Syndrome Foundation Banner
International Office
411 Longbeach Parkway
Bay Village, Ohio 44140 USA
Help During Pregnancy Photo

Creating a Medical Plan of Action The Monochorionic Twin Placenta What Is TTTS? Monochorionic Placental Pictures Sonography and Appointment Questionaire Cervical Assessment, Nutrition and Bedrest Planning for Your Delivery Pregnancy Continues with a Loss Medical Research History of TTTS Placental Protocol International Registry Support From Families

The Best Thing Someone Said to Me

“Many people I hardly knew prayed for us and put us on the prayer lists at church. That helped to know others cared enough to do this even when they hardly knew us. Since I was on bedrest for 3 months, my neighbors took turns making us dinner and watching our 3 year old. This helped a lot.” Grove City, OH

“That there is still hope.” Layfayette, CO

“Our priest reminded us that the babies know and love us, no matter what.” Forrest Hills, NY

“There isn’t any one thing said. It is the people who listen that help the most.” Chapin, SC

“Our doctor said, ‘Your babies are extremely healthy. There is no reason these babies will not grow to be big, beautiful normal babies.” Salt Lake City, UT

“That they would pray for me and the babies.” Atlantic Beach, FL

“That each pregnancy and outcome is different, that these are babies and not statistics (no matter what the outcome) and we love them as such.” Tallahassee, FL

“It’s Okay to be scared and to cry uncontrollably. You must be so scared. You’re being really strong.” Flandreau, SD

“That I was a wonderful mother for doing what I could so my babies had a chance.” Watertown, WI

“My OB said to us, ‘science is an art, nothing is for sure.’ He had given us support with all the knowledge. We were not left wondering what hit us. After 21 ultrasounds, our babies arrived without any surprises, but with a lot of love.” Orland Park, IL

“That I was the best, most loving mother for fighting for my babies lives and not just quickly and easily putting this nightmare behind me by aborting.” Goodlettsville, TN

“This just happens. It’s nothing you or your husband could have predicted or done differently to avoid.” Paso Robles, CA

“Take care of yourself as well as your babies.” North Augusta, SC

“I was assured that everything would work out fine, but if it did not, that I would be able to cope. My doctor reassured me by providing intensive monitoring of the babies and taking care of everything personally.” Hamburg, GERMANY

“My 75 year old mother, who lives in a nursing home, made it her job to pray for you and your babies for hours everyday.” San Antonio, TX

“My mother said that I didn’t have to go through this alone.” San Bernadino, CA

“Everyone brought meals to my house during my bed rest and were receptive to listening to my concerns.” Bartlett, IL

“There is a chance, don’t give up. We are here for you anytime” Clouis, CA

“There were so many kind and generous people. Friends of family actually gave us money to help with travel expenses!” Sandy, UT

“Whatever decision we made, they (my husband’s parents) said they would stand by us and help us in any way they can.” Troy, MI

“There is hope!” Greenville, WI

“We’ve been praying for you and your babies.” Marion, IA

“When my husband told me, It will be OK.” My father commended me on being positive.” Laurenceville, GA

“That I was brave to have the laser surgery. Friends allowed me to feel any way I wanted and to talk openly about the loss and how I felt it was my fault or that I was a failure.” Libertyvillle, IL

“We had many, many people praying for the babies. It was nice knowing that so many people cared.” Columbia, TN

“You will always have your children, no matter what happens they will always be yours.” Cedar City, UT

“Stay positive. I’ll contact the doctor immediately...Dr. De Lia called back the next evening.” Long Beach, NC

“All of my family and friends, also people that I became friends with during my pregnancy, were very supportive and caring.” Xenia, OH

“That we were so brave and that we would make the right decision for our family. I really feel this was the hardest thing I have ever gone through. I will never forget it. I know how lucky we are.” Hanson, MA

“We’ll do everything we can to save them both.” Holyoke, CO

“They would pray for us...Is there anything we can do?” Galloway, OH

“I’m so sorry. I will pray for you and your babies. Just knowing that people genuinely cared about us. Most people didn’t know about it until later on in the pregnancy.” Deptford, NJ

“Family and friends very helpful sending cards, staying in phone contact, coming over to help during bedrest. The kindest thing wads an encouraging poem by Maya Angelou from my mother.” Chicago, IL

“My sister said she was proud of me for handling the situation in the manner I did - seeking information and not giving up. The support was very helpful.” Charlotte, NC

“They were here for a reason. If they weren’t meant to be, they would never have been conceived.” Hixon, TN

The TTTS Foundation In The News


>

Learn about TAPS- MUST do MCA dopplers on all pregnancies

A form of TTTS, TAPS can occur after laser surgery or during a monochorionic pregnancy with no signs of TTTS or problems.
>

Updated List of Questions

Questions to Ask at Every Ultrasound. Ultrasounds Must Be Weekly Starting at 16 Weeks.
>

Raise Donations on Facebook

This is a fantastic and easy way to support the fight against TTTS and bring help and hope to families
>
World Awareness Day - Dec. 7 2010

TTTS Walk for the babies

Official TTTS Foundation Events
Copyright © 1997-2018 The Twin To Twin Transfusion Syndrome Foundation. All Rights Reserved
411 Longbeach Parkway, Bay Village, Ohio 44140 USA | 800-815-9211 |