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411 Longbeach Parkway
Bay Village, Ohio 44140 USA
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NICU Support
Special Needs Support
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Prematurity Resources

¨ Newborn Intensive Care- What Every Parent Needs to Know by Jeanette Zaichkin, RNC, MN, 1996. AM, TLC, NI. An excellent book!¨ Your Premature Baby and Child: Helpful Answers and Advice for Parents (Berkley, 1999) is a how-to manual for preemie parents after the NICU. This book is a unique, comprehensive, and empowering handbook providing detailed information for preemie parents at home in a parent friendly format. Contents include discharge planning, adjusting to home, attachment, managing medical equipment, extensive medical information, feeding issues, developmental delays, early intervention, transitioning to school, and emotional support. Co-authors Amy Tracy and Dianne Maroney, RN are both mothers of premature infants and are joined by an impressive list of medical experts and contributors from across the country.

¨ Kangaroo Care by Susan M. Ludington-Hoe, Ph.D., available from Susan Ludington, University of Maryland School of Nursing, 515 W. Lombard St. Room 274, Baltimore, MD 21201, (410) 706-8625
¨ The Premature Baby Book by Helen Harrison, St. Martin's Press, NY, 1983. This book is outdated but still has some useful information. The second edition is in the works now.

¨ When Pregnancy Isn't Perfect by Laurie Rich

¨ Your Premature Baby by Frank P. Manginello, MD and Theresa Foy DiGeronimo MEd., Wiley, NY, 1991.

¨ Baby talk: for parents who are getting to know their special care baby
by Dale Hatcher and Kathleen Lehman. This is great book for parents because it helps them interact with their babies.

¨ Loving and letting go: for parents who decide to turn away from aggressive medical intervention for their critically ill newborn" by Deborah Davies

¨ Growing Sophia: The Story of Premature Birth is told in the words of Rochelle Barsuhn who chronicles the birth at 24 weeks of her daughter Sophia, as well as the emotional highs and lows faced by she and her husband, Scott.

¨ The Pain of Premature Parents: A Psychological Guide to Coping by Mike Hynan, Phd., University Press of America

¨ Dear Zoe by Max Dupree, Harper Collins, San Francisco, 1996. This is a book written from a grandfather to his preemie granddaughter, a 24 weeker. This book is beautifully written but has a large Christian content.

¨ Baby Hands and Baby Feet-Poems and Drawings from the Nursery by Nancy Kennedy and David Pegher, NICU-Ink, 1995.


¨ Footsteps NICU baby book available free from Wyeth-Ayerst Laboratories Professional Services, P.O. Box 8299, Philadelphia, PA 19101-1245, (800) 321-2304, in PA (800) 342-2401.

¨ Prematurely Yours available from Prematurely Yours, 12515 Flagg Drive, Lafayette, CO 80026.


¨ Believe in Katie Lynn by Bartholomew, Md Resta, et al. 1995. This book is a tearjerker, so beautiful!

¨ Born Early: A Premature Baby's Story for Children by Lida E. Smith Lafferty. 1994. ISBN #: 1-577-49064-9.

¨ The Frogs Had a Baby, A Very Small Baby available from the author, Jerri Oehler RN, Ph D, P.O. Box 3362, Duke University Medical Center, Durham, NC 27710.
Katie's Premature Brother

¨ Mommy, What is a Preemie? International Childbirth Education Association (ICEA), P.O. Box 20048, Minneapolis, MN 55420.

¨ No Bigger Than My Teddy Bear

¨ Our New Baby Needs Special Help: A Coloring Book for Families
Whose New Baby Has Problems

¨ Special Care Babies for ages 3-8,

¨ Timmy and Itsy Bitsy Baby Kate by Sally Jones. 1990. McKay-Dee Hospital Center, Newborn Intensive Care Unit, 3939 Harrison Boulevard, Ogden, UT 84409.

¨ Waiting for Baby Joe by Pat Lowery Collins, available from Albert Whitman & Co., 6340 Oakton Street, Morton Grove, IL 60053-2723, (800) 255-7675, FAX (847) 581-0039

¨ Watching Bradley Grow: A Story About Premature Birth by Elizabeth Murphy-Melas. 1996.


¨ Little Bear's Diary: A Journal for Preemies & Special Babies available from The Preemie Store...and More, 17195 Newhope St., Ste 105, Fountain Valley, CA 92708, (714) 434-3740,
¨ My NICU Journal.


¨ Mother Goose Baby Calendar, 3855 Saddle Rock Rd., Colorado Springs, CO. 80918
¨ The Preemie Calendar by Amy Tracy, Tracy Graphics, Attn: Amy E. Tracy, 135 Briarcrest Place, Colorado Springs, CO 80906, (719) 576-2278,

¨ A Place to Remember, 1885 University Avenue West, Suite 110, St. Paul, MN. 55104, (800) 631-0973


¨ "So you know someone who's had a premature baby? Advice for friends and family of anyone who's had a premature baby"

¨ "When your baby is premature: advice for new parents from Preemie-L parents"

¨ "Supporting siblings in the NICU"

¨ "Breastfeeding your premature baby"

¨ "After the NICU: advice for when you finally bring your baby home"


¨ "Tiny Bundles" Custom-sized items for premature and low-birth-weight babies.

¨ "Tiny Things" (*) Products for Premature Infants.

¨ For Kids Only in Winnetka, (441-6640)

¨ For a Special Baby-sizes 1-8 pounds, Pat Cotter 1682 Roxanna Lane, New Brighton, MN., 55112.

¨ TLC (Tiny Little Clothes) clothing CO. P.O. Box 245, Hunt Valley, MD., 21030-0245, (410) 876-9071 (800) 755-4852

¨ Preemie Sophisticate (800) 221-4556, 4802 E. Buckeye Rd., Madison, WI. 53716

¨ Oh So Small, 5808 78th St. Ct. E., Puyallup, WA. 98371, (206) 770-2229.

¨ Preemie Wear (800) 992-tiny (8469) for babies 1-8 pounds, 3258 E. Ridge Place, Twin Falls, ID. 83301

¨ The Preemie Store and More! Melinda Wilson, 17195 Newhope St., Suite 105. Fountain Valley CA. 92798. (800) OSOTINY (676-8469)
¨ Tiny Angels, INC. Preemie and low birth weight Apparel, 106 Somerset, Valparaiso, IN. 46383, Tel. (219) 477-4806

¨ Alexis preemie wear, (800) 253-9476

¨ Preemie pacifiers-WEE Thumbie from Children’s Medical Ventures, INC. 541 main Street, S. Weymouth, MA. 02190. (800) 377-3449

¨ Cloth preemie dolls, currently only 1 lb and 3-4 lb sizes, but can make all sizes and weights. ($25 - $35)

The TTTS Foundation In The News


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Learn about TAPS- MUST do MCA dopplers on all pregnancies

A form of TTTS, TAPS can occur after laser surgery or during a monochorionic pregnancy with no signs of TTTS or problems.
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Updated List of Questions

Questions to Ask at Every Ultrasound. Ultrasounds Must Be Weekly Starting at 16 Weeks.
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Raise Donations on Facebook

This is a fantastic and easy way to support the fight against TTTS and bring help and hope to families
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World Awareness Day - Dec. 7 2010

TTTS Walk for the babies

Official TTTS Foundation Events
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