One of the programs of The Twin to Twin Transfusion Syndrome Foundation is to provide the unique bereavement support to parents who have experienced a loss in their multiple birth pregnancy. The best support that a bereaved parent can receive is support from another parent that has ‘been there’ and has gone through as close to the same experience as possible. Another parent who knows first hand the nightmare experience of twin to twin transfusion syndrome after the joy of finding out you are pregnant with twins or triplets.
This section has been created to give immediate support to you in your loss and especially planning for the compassionate delivery of your babies if you are still pregnant. More information can be mailed to you in our bereavement packets that you can order below.
To receive a Bereavement packet from the Foundation, you may e-mail us with your name, address and phone number at:
(Please use the subject "Bereavement")
Thank you for your wonderful, kind support during our diagnosis of TTTS and the loss of our daughter, Beverly Mary, two years ago this month. I continue to think of how amazing you are in the way you handled our phone conversations- how you listened and sympathized while still giving me direction in my fear and grief. You are a blessing to me, and to many others who share our experiences. Because of our conversations, the way we handled our daughter's diagnosis and loss is something we look back on without regret. We have meaningful memories and momentos that we never would have even considered without your prompting. "Thank you" hardly seems adequate.