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411 Longbeach Parkway
Bay Village, Ohio 44140 USA
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Parents Share Their Feelings About the TTTS Foundation

" We got most of our information from The TTTS Foundation. We would not have been armed with the vital information we needed had we not called The Foundation. We were able to make sound, educated decisions based on all the information we had." Charlotte, NC

"I received a lot of information plus I had someone to talk to who had been through the same ordeal. It also helped me to think about the treatment plan, and to make my own decisions, not just to listen to my doctor and let him decide on my babies' fate." Atlantic Beach, FL

"Information provided, and fast! Put me in contact with other parents with the same experience. Provided information and first hand accounts of FLOC." Chicago, IL

"We were very grateful to get updated information. Many books we read had information from the 80"s. It was also nice to know there were other families who had experienced the same choices, fear, expectations and turmoils." Paso Robles, CA

"Much more detailed information available about treatments than from perinatologists. Excellent to be able to talk to women who had TTTS and had positive outcomes. Doctors John Elliot and Julian De Lia, excellent sources of information." Libertyville, IL

"Very friendly, informative, and financially helpful. Dr. De Lia called every week." Long Beach, NC

"Luckily, I had the Internet on my computer at work. I found the site and was able to educate myself. I think the doctors should have known about your Foundation the day I was told I had TTTS." Laureceville, GA

"Talking to volunteers was great help. I knew I could get my questions answered and have somebody to talk to who knows what it is." Sunnyvale, CA

"It let me know I wasn't alone and that information was made available to our family." Troy, MI

"Very helpful with information and could not have been more helpful in helping me understand and accept my feelings." Fort Wayne, IN

"You helped us contact the top people who could help us and who gave us hope! They were all great to talk to and willing to help our doctors too." Farmingdale, NY

"They kept me thinking positive the whole way. They gave me the facts and the choices I had. They gave me the courage to ask the doctors questions." Tallahassee, FL

"After being told that we had a severe case of TTTS and the outcome looks grim, we called and talked to The TTTS Foundation and were told it is not hopeless...many babies have survived healthy! With that in mind, we had the courage to continue on with what was called a doomed pregnancy (both survived at 33 weeks)." Orland Park, IL

"Very helpful. We got a lot more information on TTTS through The Foundation, even more than our doctor told us." Cedar City, UT

"The TTTS Foundation gave us direction and helped us find transportation and rooming for our treatment. We are forever grateful for all they have done. If it were not for them, we would have lost our children." Lafayette, CO

"Your literature explained everything in layman's terms. Without all that medical lingo I could really understand what was going on and what my options were. I also enjoyed your case histories." Boykins, VA

"It was helpful on helping me to gather information. Talking to mothers who had experienced this syndrome was enormously no one else understood our feelings." San Antonio, TX

"They sent us information and helped with travel arrangements. They were also very supportive and comforting." Sandy, UT

"Quick information. Website was invaluable." Marion, IA

"I got a lot of information I had not before and could judge from it the quality of my doctors. Also, after receiving it, I was able to do further research regarding experts and technologies." Hamburg, GERMANY

"Got some great information and support. When in a situation such as this, it is very helpful and comforting to speak to someone who has been in your shoes." Brigantine, NJ

"Great to learn more about TTTS than what our doctor told us. I especially appreciated the packet that was mailed promptly and the parent contact list. I spoke with someone from the list several times." Brookfield, IL

"They were wonderful. They let us know everything we needed. They did not rush us. Very kind and caring." Clovis, CA

"I was given a book by a friend about The Foundation. It was helpful because the doctors gave me a very general explanation of TTTS. I found more specific information and more compassion from The Foundation." Watertown, NY

It was very helpful in gathering information and support. The website was wonderful. We were able to read about TTTS and the laser treatment immediately and it probably saved my donor baby's life." Goodlettsville, TN

"When diagnosed at 18 weeks, I used the TTTS homepage to get information on the syndrome as well as options for treatment. Wonderful homepage!!!" Lebanon, CT

The TTTS Foundation In The News

Raise Donations on Facebook

This is a fantastic and easy way to support the fight against TTTS and bring help and hope to families
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Learn about TAPS- MUST do MCA dopplers on all pregnancies

A form of TTTS, TAPS can occur after laser surgery or during a monochorionic pregnancy with no signs of TTTS or problems.
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Updated List of Questions

Questions to Ask at Every Ultrasound. Ultrasounds Must Be Weekly Starting at 16 Weeks.
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World Awareness Day - Dec. 7 2010

TTTS Walk for the babies

Official TTTS Foundation Events
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411 Longbeach Parkway, Bay Village, Ohio 44140 USA | 800-815-9211 |