To increase public awareness of twin to twin transfusion syndrome.
To increase interest and support from healthcare professionals and referral organizations.
To teach healthcare professionals to be sensitive to the special needs of families with twin to twin transfusion syndrome from diagnosis through delivery and beyond.
To increase awareness of the latest treatment options to save babies affected by twin to twin transfusion syndrome.
To further develop and expand our international twin to twin transfusion syndrome registry to collect medical data on babies from birth and throughout their lifetime to track their health.
To publish our registry data in medical journals and continue to be the primary resource for twin to twin transfusion syndrome medical information
To seek endorsements from national and international medical associations for our Foundation’s protocol for postpartum placental analysis making it universally accepted.
To seek CPT codes from the AMA and ACOG for the various cutting edge twin to twin transfusion syndrome treatments such as laser therapy.
To organize the first international conference solely devoted to twin to twin transfusion syndrome as a forum for the world’s experienced specialists and researchers.
To pass legislation ensuring that Medicaid will cover laser surgery for pregnant mothers without private insurance.
To pass legislation making the standard of care for pregnancies with monochorionic placentas to include weekly ultrasounds from 16 weeks through delivery.