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411 Longbeach Parkway
Bay Village, Ohio 44140 USA
800-815-9211
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Goals of the Twin to Twin Transfusion Syndrome Foundation

Bullet Point To increase public awareness of twin to twin transfusion syndrome.

Bullet Point To increase interest and support from healthcare professionals and referral organizations.

Bullet Point To teach healthcare professionals to be sensitive to the special needs of families with twin to twin transfusion syndrome from diagnosis through delivery and beyond.

Bullet Point To increase awareness of the latest treatment options to save babies affected by twin to twin transfusion syndrome.

Bullet Point To further develop and expand our international twin to twin transfusion syndrome registry to collect medical data on babies from birth and throughout their lifetime to track their health.

Bullet Point To publish our registry data in medical journals and continue to be the primary resource for twin to twin transfusion syndrome medical information

Bullet Point To seek endorsements from national and international medical associations for our Foundation’s protocol for postpartum placental analysis making it universally accepted.

Bullet Point To seek CPT codes from the AMA and ACOG for the various cutting edge twin to twin transfusion syndrome treatments such as laser therapy.

Bullet Point To organize the first international conference solely devoted to twin to twin transfusion syndrome as a forum for the world’s experienced specialists and researchers.

Bullet Point To pass legislation ensuring that Medicaid will cover laser surgery for pregnant mothers without private insurance.

Bullet Point To pass legislation making the standard of care for pregnancies with monochorionic placentas to include weekly ultrasounds from 16 weeks through delivery.


 
The TTTS Foundation In The News

Prayers to all the Families


Thousands of Babies are Diagnosed
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December is International TTTS Awareness Month


FIGHT TTTS Challenge and Video Awareness Campaign
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World Landmarks to Light Blue December 7th


World TTTS Awareness Day
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World Awareness Day - Dec. 7 2010

TTTS Walk for the babies

Official TTTS Foundation Events
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411 Longbeach Parkway, Bay Village, Ohio 44140 USA | 800-815-9211 | www.tttsfoundation.org